Limbal Stem Cell Deficiency - an opportunity

CISCRP’s LSCD Patient Advisory Board (December, 2019)

CISCRP (The Center for Information and Study on Clinical Research Participation) is seeking individuals diagnosed with Limbal Stem Cell Deficiency (LSCD) as well as those who care for a loved one with this condition to participate in a half-day, in-person Patient Advisory Board meeting in December (exact date and timing is TBD).

During the meeting, participants will be asked to share their experiences living with LSCD as well as their thoughts and perceptions of research and clinical trials. This is a great opportunity to provide feedback from the patient perspective and help improve the experiences of future study volunteers in clinical trials for LSCD.

This is a one-time meeting and NOT a clinical trial. As a thank you for participating, an honoraria will be provided to those who are eligible and attend the meeting. Breakfast, lunch, and reimbursements for travel associated with the meeting are also provided.

If you are interested in this opportunity or wish to learn more, please contact Bevin Edwards (CISCRP). She is more than happy to discuss the project with you and answer any questions you may have!

Bevin Edwards, CISCRP Research Associate

Phone: 617-725-2750 x402 | Email: bedwards@ciscrp.org